Five-year-old Beau starts each day being carried by one of his parents to the family91Ƶs living room, where his wheelchair awaits in their Beamsville, Ont., home.
Diagnosed with spinal muscular atrophy at 17 months old, Beau is unable to walk independently due to the disease, which damages nerves and leads to severe muscle weakness.
Beau91Ƶs day-to-day living comes with barriers most would never think about when raising a child, said his mother, Rachel O91ƵHagan. The doorways in their home aren91Ƶt wide enough for a wheelchair to fit through, meaning Beau has to be carried from room to room, including the bathroom.
He can91Ƶt access the sink to wash his hands or brush his teeth on his own, nor reach the light switches. As he gets older, O91ƵHagan said she and her husband Bryce know these challenges will only compound, especially as he gets too heavy for them to lift.
91ƵThese are all things that he absolutely could do on his own if the house could accommodate him,91Ƶ she said.
91ƵHe very much wouldn91Ƶt need our support 91Ƶ He could freely move around.91Ƶ
Amid a housing crisis that has Canadian policymakers and developers scrambling to bolster supply, those living with disability are urging leaders to enshrine accessibility into more newly built homes than the country has historically seen.
91ƵIt just really seems like an impossible situation for us, I won91Ƶt lie,91Ƶ said O91ƵHagan.
91ƵWe want our son to be able to access everything he needs.91Ƶ
Beau91Ƶs situation mirrors the early life of Tracy Odell, a 66-year-old woman living in Toronto who was born with the same condition.
Growing up, Odell attended what91Ƶs now known as Holland Bloorview Kids Rehabilitation Hospital, which she described as 91Ƶan institution for kids91Ƶ where they live and receive their schooling.
But when she turned 18 and aged out of the program, her options were scarce.
91ƵA nursing home was accessible, but apartments weren91Ƶt. Houses weren91Ƶt built that way. You had to look specifically for an apartment that didn91Ƶt have stairs in the building and (had) an elevator,91Ƶ said Odell.
91ƵAs far as the design of the apartment, you had to make do.91Ƶ
Decades later, Odell is struck by how little has changed, calling the accessible housing options available in Canada 91Ƶdeplorable.91Ƶ
91ƵThis is a hugely urgent matter,91Ƶ said Jutta Treviranus, director of the Inclusive Design Research Centre at OCAD University.
91ƵThere91Ƶs a housing crisis for everyone, but the housing crisis is so much more intense for anyone requiring accessible housing because the lack of supply is exponentially more scarce.91Ƶ
Treviranus said it91Ƶs unsurprising Canada lacks sufficient housing to meet the disability community91Ƶs needs, considering how infrequently their voices are heard at the decision-making table.
91ƵAn accessible home is an adaptive home. It91Ƶs a home that has choices,91Ƶ she said.
91ƵThere isn91Ƶt a fixed solution or a singular one-size-fits-all approach to providing accessibility.91Ƶ
Federal housing advocate Marie-Josée Houle called on Ottawa in her 2022-2023 report to 91Ƶbuild accessibility up front91Ƶ into its National Housing Strategy.
That included recommendations such as ensuring all new government-funded housing units meet a minimum criteria of 91Ƶvisitability91Ƶ 91Ƶ defined as having a level entrance, wider doorways and hallways, and a wheelchair accessible washroom on the entry-level floor.
All levels of government have a role to play in spurring more accessible housing, whether through changes to building code requirements or financial incentives tied to grants, said Stephanie Cadieux, the federal government91Ƶs chief accessibility officer.
Asked if Canada has fallen behind peer countries in that regard, Cadieux acknowledged, 91ƵWe aren91Ƶt yet in the lead.91Ƶ
91ƵWe are not building homes that work for everybody. The way we build homes is very much that homes are designed around able-bodied people,91Ƶ she said in an interview.
91ƵIt91Ƶs important that we start through policy to insist that we are building homes that are adaptable for people91Ƶs changing needs over time. Ultimately if we do, that will ensure that everyone is able to live where they want to live 91Ƶ because that supply of housing will exist. It currently doesn91Ƶt exist.91Ƶ
Cadieux said there is an enormous opportunity to change the face of accessible housing across Canada at this moment, particularly as the federal government targets 3.87 million new homes by 2031.
91ƵNow91Ƶs the time,91Ƶ she said.
91ƵIt91Ƶs proven over and over again that it91Ƶs far more costly to fix something after the fact when it comes to accessibility than it is to do it at the beginning.91Ƶ
Studies by the Canada Mortgage and Housing Corp. support that claim. A 2019 comparison conducted by the national housing agency showed it would cost between 185 to 779 per cent more 91Ƶ depending on the housing type 91Ƶ to make an existing Montreal home accessible compared with a new home.
An earlier CMHC report said the construction of an accessible and adaptable new home carried an added cost of just six to 12 per cent compared with standard construction, depending on the model and the city in which the home would be built.
91ƵWith our population aging and demand for adaptable and accessible housing on the rise, it is in the housing industry91Ƶs best interest to adjust its offering accordingly,91Ƶ it said.
The Daniels Corp. is a developer in the Greater Toronto Area that has taken up that call through its Accessibility Designed Program. First unveiled in 2017, the builder set out to create accessibly designed homes for people using mobility devices at no additional cost.
The units, available to rent or own, have features such as roll-in showers and roll-out balconies along with accessible common spaces 91Ƶ including lowered concierge desks, accessible kitchens in party rooms and waste chutes with automatic door openers.
Thus far, the developer has completed 38 accessible units, with 124 under construction and another 36 in a pre-construction design phase.
91ƵWhen we work with our trade contractors and say, 91ƵThis light receptacle and switch should be here as opposed to here,91Ƶ there is no cost to that. There is very minimal cost from the very beginning of a project if you are looking at building washrooms in the accessible units that have no tub,91Ƶ said Heela Omarkhail, Daniels91Ƶ vice-president of social impact.
91ƵIt was really these types of features and often finishes that we looked at (and said), 91ƵOK, if we can make some of these enhancements from the very beginning 91Ƶ rather than trying to bolt it on later, can we be more responsive to the needs of the accessibility community?91Ƶ91Ƶ
But Omarkhail acknowledged there is far more work to do on that front. She said there is a gap of accessible units available compared with the needs of Canadians 91Ƶ estimates suggest more than a quarter of whom are living with some form of disability.
91ƵIf you look across our market in the GTA or in Canada as a whole, we are not building 15 to 20 per cent of homes with enhanced accessibility features,91Ƶ she said.
Kate Chung, co-founder of the Accessible Housing Network, worries that 91Ƶpeople with disabilities are being totally ignored91Ƶ in the process.
But she said ongoing efforts to boost Canada91Ƶs housing supply could serve as a turning point.
In early 2024, the federal government launched its Housing Design Catalogue program, a reboot of an initiative from the post-Second World War era meant to provide standardized housing designs that reduce the time required for design, approvals and construction.
A government report released in the summer said feedback from stakeholders consistently highlighted that greater accessibility must be an essential feature of the design catalogue.
91ƵThe non-profit sector and accessibility advocates reinforced not only the importance of universal design features for addressing the needs of Canadians today but also the growing need as Canada91Ƶs population continues to age,91Ƶ the report said.
Chung said this recommendation, if carefully adopted, could steer Canada91Ƶs housing crisis in the right direction.
91ƵHere91Ƶs an opportunity. You91Ƶre going to be building all this housing and you have control over the design of the housing,91Ƶ she said.
91ƵYou need to make it all universal design, so anyone of any age or ability can live there and can continue to live there, even if they get hit by a stroke or heart attack, (multiple sclerosis), a truck 91Ƶ whatever happens to them, whether they end up with a permanent disability or a temporary one.91Ƶ
Today, the Toronto bungalow where Odell lives is imperfect, but good enough to get by, she said. It features a lift to get up the front porch and enter the home, along with a ramp out back built by her husband.
She doesn91Ƶt have access to the basement, nor adjustable counters in the kitchen to help her reach.
Her doorways are just wide enough to pass through, although they91Ƶre marked with scrapes due to the space constraints of entering a room with the assistance of a wheelchair.
Still, Odell said she91Ƶs lucky to have a home in the community that isn91Ƶt encumbered by further barriers.
91ƵIf I was looking for something else right now, I think that91Ƶd be very, very difficult,91Ƶ she said.
Sammy Hudes, The Canadian Press